‘My feet turn YELLOW and I’m forced to wear SIX pairs of socks indoors to keep blood circulating’
A woman with Raynaud’s wears up to six pairs of socks to…
‘My young son has rare BUTTERFLY skin – I refused to accept defeat when doctors said he wouldn’t survive’
A mum refused to "accept defeat" after doctors said her son wouldn't…
Woman, 18, dies after extremely rare disease that saw her trapped in ‘body of child’
Elena, an 18-year-old with the rare NUBPL mitochondrial disease, has passed away…
‘I have a rare disorder that causes my skin to tear off – trolls say I’m an alien’
A man who has one of the rarest conditions in the world…
Parents of baby with ‘self-harm’ syndrome share first warning sign that started days after birth
Parents of a child diagnosed with rare Lesch-Nyhan Syndrome share their journey,…
‘I’ve lost count of my girl’s broken bones – people ask why I kept her as a baby after rare diagnosis’
Mum Emma Honća shares her daughter Mya's journey with osteogenesis imperfecta to…
‘I lost 40 pounds from a rare disease – my body was eating itself’
A 17-stone bodybuilder, rapidly lost his weight and ability to speak due…
Woman ‘locked’ inside own body unable to speak or move for THREE years – as husband shares traumatic story to warn others
A woman has sadly lost her battle with a rare undiagnosed disease…