Mum left ‘heartbroken’ as one twin dies and second diagnosed with rare condition
A mother shares her harrowing journey after losing one of her twin…
Humiliated mother seeks cosmetic surgery for rare condition causing facial melting appearance
Marta Helena Barbosa seeks cosmetic surgery for neurofibromatosis, aiming to overcome societal…
‘Rare health condition means I can’t smile or show emotion,’ says influencer
Paula Paiva, a brave influencer with Moebius syndrome, shares her inspiring journey…
Woman left with skin as ‘fragile as butterfly wings’ by condition that killed FOUR of her aunties
She says her skin is as fragile as "butterly wings"...
‘The sound of people eating fills me with rage – I can barely stand having Christmas dinner with my family,’ says woman with rare condition
She has to block out sound completely to avoid lashing out in…
Comedian Paul Foot had first burp aged 49 – and only found out what one was EIGHT months ago
He's hoping to repeat
‘I’ve been called a PENGUIN because of how I walk due to incurable condition – but I love my body’
She was once too "ashamed" to leave the house because of her…
Mum devastated as baby ‘FORGETS how to BREATHE’ due to devastating condition
She's hoping for a lifeline to help her little boy...
‘I lost my eye to extremely rare disease – doctors even KEPT my eyeball for research,’ says mum-of-two becoming TikTok sensation
A mum-of-two has revealed how she lost her eye to a disease…
