Tag: Rare condition

‘My son laughs constantly and barely sleeps – he has Angelman SYNDROME’

A dad is taking on an Ironman for his four-year-old son who…

Lee Bullen Lee Bullen

Mum ‘sounds like Darth Vader’ after pregnancy uncovered rare heart defect

A rugby-playing mum needed a wheelchair to get out of bed after…

Amy Walters Amy Walters

‘My toddler looks healthy – but she has a disease so rare I had to Google her prognosis’

Toddler diagnosed with a genetic condition so rare her own doctor had…

Karl Grafton Karl Grafton

Brit tot, 1, who had ‘biggest grin’ dies after lifelong battle with rare condition

British toddler with the 'biggest grin' dies aged one after a lifelong…

Will Millar Will Millar

Baby born with FOUR arms and FOUR legs in rare ‘parasitic twin’ case

A newborn with four arms and four legs has left doctors stunned…

NTK Journalist NTK Journalist

Boy, 15, given months to live after doctors repeatedly dismiss rare heart cancer as ASTHMA

Boy, 15, given months to live after rare heart cancer was mistaken…

Hannah Phillips Hannah Phillips