Tag: Rare condition

‘Child influencer’ who inspired £10m fundraiser for rare disease research dies aged five

A five-year-old boy with a rare brain disease who became the face…

William McGee William McGee

World’s shortest model reveals what life is REALLY like at 2ft 4in

At just 2ft 4in tall, Wildine Aumoithe is the world's shortest model…

NTK Journalist NTK Journalist

‘My toddler’s wobbly walk was the first sign of a disease most doctors have never heard of’

Heartbroken mum shares the terrifying early signs that something was amiss with…

Ria Newman Ria Newman