Tag: Rare condition

Mum of boy 8 with DEMENTIA must raise £3m for approved drug

Eight-year-old Cody Carroll has childhood dementia (Sanfilippo Syndrome Type A). His mum…

Ria Newman Ria Newman

‘A cold put me to sleep for SIX WEEKS – only changing my life cured me’

Woman woke up after sleeping for six weeks with a simple cold…

Amy Walters Amy Walters

‘My son laughs constantly and barely sleeps – he has Angelman SYNDROME’

A dad is taking on an Ironman for his four-year-old son who…

Lee Bullen Lee Bullen

Mum ‘sounds like Darth Vader’ after pregnancy uncovered rare heart defect

A rugby-playing mum needed a wheelchair to get out of bed after…

Amy Walters Amy Walters

‘My toddler looks healthy – but she has a disease so rare I had to Google her prognosis’

Toddler diagnosed with a genetic condition so rare her own doctor had…

Karl Grafton Karl Grafton

Brit tot, 1, who had ‘biggest grin’ dies after lifelong battle with rare condition

British toddler with the 'biggest grin' dies aged one after a lifelong…

Will Millar Will Millar