Tag: Rare condition

Influencer who chronicled battle with one-in-a-million skin condition dies aged 36

An influencer who documented life with a rare genetic condition has died…

William McGee William McGee

Man’s scalp resembles brain due to rare condition

Man whose scalp thickened into deep folds resembling a human brain has…

Lee Bullen Lee Bullen

Teen girl has rare condition causing breasts to swell to QUARTER of entire body weight

A teenage girl has been operated on after a rare condition caused…

Ria Newman Ria Newman

‘Child influencer’ who inspired £10m fundraiser for rare disease research dies aged five

A five-year-old boy with a rare brain disease who became the face…

William McGee William McGee