Tag: Rare condition

7ft 2in influencer dies at 26 leaving boyfriend and baby son

Social media star known for her extraordinary 7ft 2in height has died…

Lee Bullen Lee Bullen

‘I was so healthy I never registered with a GP until constant toilet trips’

Woman diagnosed with rectal cancer at 28 shares symptoms that changed everything…

Ria Newman Ria Newman

‘People think my sleeping disorder is a JOKE or that I’m just lazy but I’m at risk every day’

Young woman with narcolepsy reveals how she falls asleep anywhere - on…

Hannah Phillips Hannah Phillips

Mum of boy 8 with DEMENTIA must raise £3m for approved drug

Eight-year-old Cody Carroll has childhood dementia (Sanfilippo Syndrome Type A). His mum…

Ria Newman Ria Newman

‘A cold put me to sleep for SIX WEEKS – only changing my life cured me’

Woman woke up after sleeping for six weeks with a simple cold…

Amy Walters Amy Walters

‘My son laughs constantly and barely sleeps – he has Angelman SYNDROME’

A dad is taking on an Ironman for his four-year-old son who…

Lee Bullen Lee Bullen

Mum ‘sounds like Darth Vader’ after pregnancy uncovered rare heart defect

A rugby-playing mum needed a wheelchair to get out of bed after…

Amy Walters Amy Walters