Tag: Rare condition

‘My toddler looks healthy – but she has a disease so rare I had to Google her prognosis’

Toddler diagnosed with a genetic condition so rare her own doctor had…

Karl Grafton Karl Grafton

Brit tot, 1, who had ‘biggest grin’ dies after lifelong battle with rare condition

British toddler with the 'biggest grin' dies aged one after a lifelong…

Will Millar Will Millar

Baby born with FOUR arms and FOUR legs in rare ‘parasitic twin’ case

A newborn with four arms and four legs has left doctors stunned…

NTK Journalist NTK Journalist

Boy, 15, given months to live after doctors repeatedly dismiss rare heart cancer as ASTHMA

Boy, 15, given months to live after rare heart cancer was mistaken…

Hannah Phillips Hannah Phillips

Twins born joined at the head tragically die minutes after final separation surgery

Conjoined twins joined at the head have died after the final stage…

William McGee William McGee

Bodybuilder’s simple cold triggered organ failure – now a rare disease is stealing his SIGHT

Bodybuilder who survived a simple cold that turned into deadly organ failure…

Amy Walters Amy Walters

Influencer with rare ‘Benjamin Button’ disease dies aged 28 after doctors said he’d only live to 12

Influencer Michiel Vandeweert, who had rare 'Benjamin Button' disease, has died aged…

William McGee William McGee