Five siblings branded ‘aliens’ due to mystery condition which has left them with disfigured faces

Siblings face discrimination as mystery condition causes disfigured faces. Seeking diagnosis and treatment, they share their journey to overcome challenges. Support them in their fight for a brighter future.
the people who are branded ‘aliens’ due to mystery condition which has left them with disfigured faces
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Five siblings have been cruelly branded ‘aliens’ due to a mystery condition which has left them with disfigured faces. Isaías, Graciosa, Preciosa, Antonio, and Miguelina Bautista also have widely-spaced eyes.

They also have overgrown cheekbones, nose bumps, and bad teeth.

But they have seven other brothers and sisters who do not suffer from it.

But doctors are puzzled as to what has caused it.

Since childhood, they have been mocked, called cruel names, and even told they were aliens.

the people who are branded ‘aliens’ due to mystery condition which has left them with disfigured faces
The siblings. (Picture: Jam Press)

Isaías said: “At one point, we even started to believe it.

“People would say that we were like that, extraterrestrials.

“Then later, we found good people who told us, no, you are human beings.”

As well as their facial deformities, Isaías, Graciosa, Preciosa, Antonio, and Miguelina suffer from headaches, breathing difficulties, dizziness, and body aches.

The siblings are from a poor family in the small community of Jínova de San Juan, Dominican Republic.

Despite desperately needing jobs, they struggle to find work, as employers discriminate against them due to their appearance.

the people who are branded ‘aliens’ due to mystery condition which has left them with disfigured faces
Graciosa Bautista. (Picture: Jam Press)

They have also struggled to get a diagnosis for their condition, which medics suspect is leontiasis but have failed to give them a definitive answer.

Leontiasis, commonly called lion face syndrome, is an overgrowth of the cranial and facial bones resulting in a lion-like appearance.Neurologist Dr Franly Vázquez describes it as a “very rare disease of which fewer than 40 cases have been reported worldwide.

“Affected patients have a buildup of calcium in the bones that form the face and skull.”

The unchecked growth of the Bautista siblings’ facial bones can severely compress nerves, leading to blindness, hearing disorders, intellectual disabilities, and other adversities.

the people who are branded ‘aliens’ due to mystery condition which has left them with disfigured faces
Isaías Bautista. (Picture: Jam Press)

In fact, Dr Vázquez believes it is incredible the siblings are still alive.

He told local media: “Unfortunately, there is no treatment to cure this disease; the treatment is aimed at improving symptoms.”

The only existing treatment involves exposing the overgrown bone, and chipping away pieces, or excising entirely where possible.

The Bautista siblings are seeking donations as they battle for a diagnosis and treatment.

READ MORE: ‘I woke up IN AGONY and thought I’d never walk again – doctors have no answers for me’

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